Can you help with awareness of cloacal exstrophy? We need help with research.I adopted a 4 year old little boy who was born with this terrible birth defect.

We live in Huntingdon,Pa. I was Braxtons foster mom for 3 years and now I adopted him. I know you have been in Huntingdon,so i was hoping that you are such a big star maybe you could help raise awareness.